CALL FOR SIBLINGS OF CHILDREN ON PROGRAM TO SHARE THEIR VALUABLE PERSPECTIVES ON PACP
Canuck Place Children’s Hospice (CPCH) along with Child Health BC, Children’s and Women’s Indigenous Health, Perinatal Services BC and BC Children’s Hospital are working together for a provincial approach to pACP. This is a two-year Ministry of Health priority project. The goal of the project is to improve the delivery of pACP services for children/youth/young adults with a serious illness and their families throughout British Columbia. CPCH is seeking patient and family member partner(s) open to sharing their lived/living experience with pediatric advance care planning (pACP) for an infant, child or youth (0-19 years of age) with a serious illness to improve these important conversations. CPCH extends an invitation to siblings of individuals with a serious illness in British Columbia to share their valuable perspectives on Pediatric Advance Care Planning (pACP). We recognize that siblings play a crucial role in the lives of individuals facing serious illnesses, and your insights are invaluable.
In addition, we hope to have representation from siblings who may also identify with one or more of the following:
- You may have a diverse cultural or social background in British Columbia.
- You may have a sibling with neurological developmental diversity and a serious illness.
- Your sibling may be living with a condition that brings an uncertain future.
- You may have experience with your sibling receiving pediatric palliative care.
Children and family are at the centre of the care provided at CPCH. We respond to the voices of our patients and families, and collaborate on improving care by working directly with families. This past year, CPCH, through the Family Engagement Coalition, invested in developing a comprehensive Family Engagement Framework to provide guiding principles, goals, opportunities, and processes to support our commitment to collaborative work with families. Partnering with families and acknowledging their living and lived experiences are vital and valuable components to improving our program services. The vision for the framework is to ensure consistent, safe, and respectful engagement with children, youth, and families at CPCH, to fully represent the diverse perspectives and promote continual improvement of pediatric palliative care and services. This opportunity will provide a platform for you to share your experiences related to pACP. The sessions will be facilitated by a Young Adult Engagement Advisor with lived experience and a counselor from CPCH with a focus
on supporting the voices of siblings of children with serious illnesses.
GOALS OF THE OPPORTUNITY ARE:
- To explore, listen, and understand the experiences, issues, and needs of siblings surrounding pACP.
- To develop an understanding of how best to have these conversations
- To integrate your unique perspective and expertise as a sibling of an individual living with a serious
DATE FOR THE VIRTUAL SESSION IS:
- Wednesday, October 25 | 4–6 p.m.
Please note: To participate, you need access to a computer and familiarity with Zoom. Additionally, your commitment to a two-hour virtual session is required.
If interested in participating in this opportunity or you wish to learn more about this engagement session, please contact firstname.lastname@example.org by Friday October 20th, 2023. We look forward to hearing from you – your voice matters!
If you are a family member interested in this opportunity and sharing your perspective of supporting your child/youth/young adult with a serious illness, please see our family partner engagement opportunity. If you are a adolescent/youth/young adult living with a serious illness interested in this opportunity, please see our adolescent/youth/young adult engagement opportunity.