Written by Elisa Castro Noriega
RESEARCH PROJECT: BC DATA LINKAGES STUDY
Lead investigators/designated PI’s
Elisa Castro Noriega and Hal Siden
May 5, 2019
Manuscript in preparation (March 2022)
Infants, children, youth, and young adults (ICYA) with serious illnesses follow unpredictable trajectories living with complex healthcare needs. Pediatric palliative care (PPC) encompasses more than the final days of life, attempting to improve quality of life, sometimes over many years. We describe demographic characteristics, calculate yearly prevalence and model risk of instability for the population in BC who would benefit from PPC services, to inform program planning, and establish baselines for future studies.
- To provide an estimate of the number of ICYA living with serious illnesses in BC, who had been diagnosed at hospital.
- To describe demographic characteristics of this population and their clinical stages.
- To determine the yearly prevalence of ICYA with serious illnesses in BC and their risk of instability.
This study will use administrative data.